Just having a moment to reflect. We have made some crazy good progress with Adam.
Let's recap. 6 months ago Adam was completely fed through a feeding tube.
We spent a month in in intensive feeding program with 3 (sometimes 4 therapies) a day. Follow up appointments with feeding teams, sticking to the protocol, increasing new foods and amounts as directed.
1. He drinks 6 ounces of liquid 3 times a day
2. He eats 3 ounces of food 3 times a day
3. 6 months ago, he ate NOTHING. Now he will eat:
broccoli with cheese sauce
spaghetti with tomato sauce
yogurt (strawberry, peach and vanilla)
chocolate chip cookies
pudding (banana, chocolate and vanilla)
Note: all of his meals and food is given in a structured meal setting, with strict rules and we feed him, he never feeds himself. However, this is HUGE progress (he is only tube fed at night now) and I wonder how much more progress he will make in 6 more months!
6 years with Asha
1 week ago