Just having a moment to reflect. We have made some crazy good progress with Adam.
Let's recap. 6 months ago Adam was completely fed through a feeding tube.
We spent a month in in intensive feeding program with 3 (sometimes 4 therapies) a day. Follow up appointments with feeding teams, sticking to the protocol, increasing new foods and amounts as directed.
Now:
1. He drinks 6 ounces of liquid 3 times a day
2. He eats 3 ounces of food 3 times a day
3. 6 months ago, he ate NOTHING. Now he will eat:
cheese
apples
applesauce
banana
green beans
broccoli with cheese sauce
chicken nuggets
spaghetti with tomato sauce
meatballs
yogurt (strawberry, peach and vanilla)
scrambled eggs
toast
waffles
french toast
crackers
chocolate chip cookies
pudding (banana, chocolate and vanilla)
peaches
pears
grilled cheese
mashed potatoes
Note: all of his meals and food is given in a structured meal setting, with strict rules and we feed him, he never feeds himself. However, this is HUGE progress (he is only tube fed at night now) and I wonder how much more progress he will make in 6 more months!
5 years with Asha
8 years ago
I love that I had to scroll down to read the entire list of things he will eat!! I remember when it was like two items long. Your hard work is paying off. I am glad that you are able to step back from the mayhem and see it. I can only imagine that there are times when it feels futile!
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