We went away

We went away this weekend. Far away.  This was the first time we have gone anywhere really far on an overnight without the kids in almost 3 years. 

Prior to this we spent one night alone, but we stayed at the Hilton one mile from the house.We also spent a two night stay at the Borgota down in Atlantic City, but the kids were about 10 minutes away with my mom. Then about one month ago, we went to a wedding in Pennsylvania, which was about a two hour drive, but this time was FAR.

We flew to California for 2 days for a friend's wedding, so it was a 6 hour flight. If there was an emergency, it would take us, at a minimum 12 hours to get to the kids. I was ridiculously nervous. 

(even though in this picture, I appear to be non-nervous.)

Adam did fine. He stayed home, so we didn't have to pack him all up and transport all that gear. I also would have been worried that we would have forgotten something, if we brought him to my mom's. My mother watched him here. She is one of the few people who has dealt with the trach, mick-key feeding tube, and his ridiculously smelly diapers. See, when you are on a liquid protein diet, like Adam, your diapers are unlike any stench ever known to man. no joke.

Yet another issue when your child is like Adam. It's difficult to have people watch him. Many people say they are willing, few come through. Also those who are willing, are not really capable of all of it. They might not be cpr trained, weren't trach trained, or can't operate the feeding tubes. Sometimes, they seem like quick to panic. Sometimes, they try to learn, but to no fault of their own, it's difficult to deal with all the medical stuff. We found that some people are freaked out by abnormalities and it's okay to be. We just can't leave him with them for more time than it takes me to shower. Also we try to be consistant with PECS  and sign language. 

This weekend, Adam did have a fever. Mom called us, spoke to two of his doctors, we called them from California, and by Monday afternoon, he was all better. Maybe he had a fever because he missed us.

Now, 3 days later, Matthew has a fever, so it might be viral, not emotional after all.